A little life was cut short by a rare genetic condition.

Katie and Tyler Livingston are determined to raise awareness about this condition, FOXG1, while keeping alive the memory of their daughter, Zoe.

Zoe was only 2 when she died from a seizure in her sleep in November 2017, just days after being diagnosed with the disorder.

The Post Falls parents don't want other parents to go through what they did.

"I want to be able to spread the word in case there are another one or two or three people who are saying, 'Hey, my kid is having these issues,'" Katie said.

Katie said only up to 400 cases of FOXG1 are known worldwide.

"Zoe was the one in a million," she said. "Everything was going fine during pregnancy other than I had two blood clots at eight weeks. The doctor said that’s fairly typical. We thought we were going to have this happy, normal child."

FOXG1 Syndrome is a severe neuro-developmental disorder caused by a mutation of the FOXG1 gene, which affects brain development and function.

The syndrome is accompanied by seizures, lack of speech and the inability to control body movements. Many FOXG1 children cannot walk and struggle with communication. According to the International FOXG1 Foundation, most cases are not inherited and have no family history of this disorder. It was only discovered 13 years ago.

"We’re trying to find a cure," Katie said. "There's no cure for it right now."

Katie said everything started out fine when Zoe was a baby, but they realized something was off when she wasn't developing at the appropriate rate. She couldn't hold up her head, she struggled with eating and gaining weight, she had an elongated pupil and had dystonia, which caused her muscles to constantly move.

After a hospital stay and different therapies, Katie explained that Zoe finally started to get back on track and grow stronger, but in the spring of 2016 she got really sick and was back in medical care.

"We prayed continuously for Zoe," Katie said. "Tests came back and they found that Zoe's MRI was abnormal.

"The MRI showed Zoe's brain had a small gap between each side, which did not let the electrons fire properly," she said. "We continued to live the life of medication, up all night, constant crying, dystonia and trying to battle it."

Eventually, Zoe's conditions worsened and she was admitted to the Seattle Children's Hospital. Doctors struggled to decipher her ailments and know for certain what was wrong, but finally that November a Seattle neurologist figured out it was FOXG1.

"We spent the whole summer learning about FOXG1," Katie said.

Katie and Tyler are now a part of the FOXG1 community, interacting with other parents who have experienced loss and who are striving to find a cure.

They're hosting Zoe's Annual Jeep Roll at 11 a.m. Saturday to bring attention to FOXG1 and share Zoe's memory with the community.

The Jeep Roll will start at 4 Wheel Parts, 5405 W. Riverbend Ave. in Post Falls, and the fleet of vehicles will head to the Heart of the City Church in Coeur d'Alene for a gathering and refreshments. The roll will conclude at Stateline Speedway Event Center, 1349 N. Beck Road in Post Falls.

All kinds of vehicles are invited to take part in the Jeep roll for $10 a vehicle or $25 for a business sponsor. All proceeds will go to the FOXG1 Foundation.

"It's to have a family-friendly event in town," Katie said. "It's something fun to do on a Saturday and in the meantime promote the awareness so people know about this."

Info: www.facebook.com/Zoes-FoxG1-Jeep-Roll-169558583736469